I got back the results of the echo cardiogram and blood cultures. Apparently I don't have endocarditis. Ugh. Thank goodness. That one creeped me out. It is a diagnosis I am VERY grateful not to have.
Also apparently 3 of my heart valves leak a little and I have "diastolic dysfunction consistent with impaired relaxation" but it is not sufficiently bad to be concerning. Phew.
In the meantime I have now been taking Pindolol for a week. It has brought about a HUGE change in my quality of life. Before I started it I was functioning at somewhere between 10-20% of my energy before I got sick; now I am functioning at about 50%. My headaches are mostly gone, I can think more clearly, I can drive more safely, I can be up and about the house with just a nap in the afternoon. Wow. If I am mellow I can even feel pretty good during the day. This morning I hustled about the house and up and down the stairs a couple of times while packing -- that was a bit too much, it wiped me out so that I had to nap... but then I felt better afterwards and got some more done in the afternoon.
I am still not at the point where I can manage life by myself -- I will still need part-time help when I come back from CT but I feel confident that I will be able to homeschool Ben and get done the basic like dishes, laundry, and cooking. That is HUGE. Hip, hip, HORAY for pindolol!